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Ulcerative Colitis and Work Life

Living with UC in the workplace

The symptoms of ulcerative colitis (UC) may make work challenging on some days. Many people hide the fact that they have UC from their employers. Results from Voices of UC indicate that more than 30% of people between the ages of 18 and 34 spend time and energy hiding their UC from coworkers, and over 20% hide their disease from their employer. Furthermore, nearly 30% of people surveyed for Voices of UC feel that UC limits their desire for professional growth, ability to build relationships with employers, and desire to take a job or promotion.

People surveyed reported being less productive than usual 34 days per year and late to work over 20 days per year due to UC symptoms. Based on an analysis of survey results, it is estimated that the loss of productivity due to UC may cost employers more than $431 million per year. This estimated impact on productivity takes into account the more than 500,000 people currently diagnosed with UC and the finding that approximately 22% of those surveyed missed an average of 16.8 days of work per year.

According to Voices of UC, more than 75% of people surveyed feel there is a need for increased awareness about UC among the general public, and 50% feel employers tend to underestimate the impact of UC on daily life. Raising awareness about UC will help those affected become better positioned for success at work as well as in other aspects of their lives.

UC in the workplace

Many people with UC can function successfully in workplace environments just by making some simple adjustments. The Crohn’s & Colitis Foundation of America offers the following suggestions to people with UC so they can successfully manage their disease at work.

Be honest

  • It may be embarrassing to discuss UC symptoms with an employer, but communication is essential. If an employer understands UC, he or she may be more accommodating, allowing a more supportive work environment.

Ask for changes that may help manage UC at work

  • Sometimes it might be something small, like sitting close to the bathroom or making accommodations to avoid lunch meetings and traveling. Additionally, by explaining the disease to an employer, plans may be made to telecommute in the event of a flare-up.

Discuss flare-ups

  • Talk to an employer ahead of time about how to manage your responsibilities should a flare-up occur. Additionally, discuss whether time away from work will be paid.

Know your rights

  • Discrimination against any employee on the basis of illness is illegal, but unfortunately it does happen. Know your employee rights.

Be conscientious and responsible

  • According to Voices of UC, 22% of people surveyed had to reduce their work schedule due to their UC symptoms. Establishing a committed work record is recommended. Keep supervisors posted on workload and status; most coworkers and employers appreciate candor.